Sturge-Weber syndrome (SWS) is a rare, congenital (present at birth), noninherited disorder characterized by the vascular malformation (birthmark) called a port wine stain, usually seen on an infant's face.
Embolization: A special material is injected into the vessel blocks blood flow, which helps control blood loss from a bleeding birthmark or reduces the size of inoperable growths.
The hardest part for parents is to wait until the birthmarks begin to fade on their own or, in the case of a birthmark that does not fade, waiting until the child is old enough for surgical management.
They should call the pediatrician if they notice bleeding from the birthmark, if a sore develops on the birthmark, if the mark is growing larger.
Some choose to use makeup to cover the birthmark if at all possible, but often birthmark removal is a more viable option.